Home for the dying provides living inspiration

Sarah House (courtesy photo)

Sarah House (courtesy photo)

Sarah House opens its doors even wider for those in need

A residential care facility for people who are sick and dying doesn’t exactly conjure up uplifting images. But a visit to Sarah House — which has provided a home, medical care and often end-of-life care for more than 250 individuals living with AIDS — is more inspiring than depressing.

Nancy Lynn recounted what a wonderful time she and her son, and later her granddaughter, had volunteering in the Sarah House kitchen.

“It was a great experience,” said Lynn, who has since become a Sarah House board member. “It’s such a loving, homelike atmosphere, with an opportunity for families to be supportive.”

“Most people come in, and as they are walking out they say this is not at all what I expected,” said executive director Randy Sunday, who successfully navigated through the Legislature recently to expand Sarah House’s services to provide holistic hospice care for the dying poor who are not HIV-positive.

Aiming to be “the next best thing to home,” the inspiration for the facility was to provide a loving, caring place for people in the final days of their lives.

It’s heartbreaking work, but it’s also beautiful work and important work, said house manager Debbie McQuade, who has worked with AIDS Housing Santa Barbara since it began in 1991, with Heath House. Sarah House opened on the Westside in 1994 and it has eight residential care beds and three two-bedroom apartments on the site. AIDS Housing Santa Barbara also serves approximately 25 other individuals who live in independent apartments.

The good news is that fewer people are dying of AIDS, and more are able to move into off-site or “scattered site” housing. The bad news is that facilities like Sarah House are closing in other places, leaving needy people with nowhere to go.

The Santa Barbara community put so much into the creation of Sarah House — named for the late Sarah Shoresman, whose daughter, Linda Lorenzen-Hughes, remains active on the board of directors — that they were determined to find a way to keep it open.

“In order to honor our contract with the public, (we thought) why don’t we try to care for people who are dying and non-HIV,” Sunday said.

The team worked with former Assemblywoman Hannah-Beth Jackson, D-Santa Barbara, to shepherd legislation that would ultimately allow Sarah House to become what Sunday termed the “first social (as opposed to medical) model hospice,” meaning it can be staffed by personnel other than registered nurses and licensed vocational nurses.

The social model allows for more staffing flexibility (for example, nurses aren’t allowed to help cook or clean) and significant cost savings.

Sunday said it costs Santa Barbara Cottage Hospital more than $4,000 a day to care for patients, while it costs Sarah House $250 a day to care for its residents.

The other difference with a social model, which is difficult to quantify, is the “next best thing to being at home” atmosphere.

“You go into a hospital, the first smell that might hit you is something slightly antiseptic. You come in here it’s going to be chicken soup or chile rellenos,” Sunday said. “And as we’re learning or seeing, hospice care is not just care for the dying resident, it’s caring for the loved ones, friends and family around them.”

“I’m so grateful we were able to get mom into such a nice place,” said Jeanette Aroldi-Schall, whose mother, Anne Arnoldi, was cared for at Sarah House before she died last month.

“Really we’re providing a great service, I feel,” said Lynn, adding that the board is working hard to get the message out that Sarah House has now opened its doors wider, to serve all needy members of the community, and that it is also seeking support in the form of monetary donations and volunteers.

For more information visit www.sarahhousesb.org, call 882.1192 or e-mail office@aidshousingsb.org.st.com.

Originally published in South Coast Beacon

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